I am trying to understand "God's will". I'm trying to trust "God's plan". I'm trying to find my way in this fallen world and find meaning to tragedies. I'm not sure what it says about me as a person, but I have a very heartbreaking habit. I keep "watch" over many sick children. Mainly, children fighting osteosarcoma, brain tumors and leukodystrophies. All of these are tragic and heartbreaking but I cannot turn my back on these kids. Then, one story leads me to another and I have to bookmark that page so I can pray for them and hope for them and even cry for them. I think part of me reads these blogs and facebook pages (even though I don't have a facebook, most prayer pages are public so you don't need an account, thankfully) to gain some sort of understanding and to also appreciate what I have in front of me because it's not always easy with the day to day activities of a busy family and especially not easy with teenagers who some days seem to hate me with all they have.
So, the faith part of my post refers to the suffering of innocent children. I learned yesterday that Xavier, a brave 2 year old who was stabbed while he slept by his Mother's jealous ex-boyfriend had died. It makes me so sad for this little guy who fought SO HARD to stay alive for a year!! Why would something like this happen to a child? How could that be God's will? I don't understand.
Here is the article about Xavier. It breaks my heart beyond words. There are so many kids I keep watch over and he was one of them. So many children dying or having recently passed from brain tumors. So many children dying or have recently died of nasty osteosarcoma. Zach Sobiech, who just turned 18 a few weeks ago, passed away two days ago. He did many things in his 18 years and he touched my heart. Here is a video of
his story. Such a great person, gone too soon. My heart goes out to his family. He wrote and performed the song Clouds and it is a great one. Take a
listen! So many children and young adults gone too soon. Those that really have touched me are
Zach,
Kaden,
Alyssa,
Miette and
Shannon. These are all children who have passed on way too early. Zach, Alyssa and Kaden all passed away recently due to osteosarcoma and Miette and Shannon, of a brain tumor. Then there's the MLD kids. The
Price Family, and
Vivian Family who each have two babies with MLD (metachromatic leukodystrophy) and the
Campbell Family who have THREE children with this horrible rare disease.
Written by a parent who recently lost his beloved daughter to a brain tumor:
"On a personal note, here are some things it
took me too long to figure out during the last few years. Enjoy every moment of
every day. Don't be in such a hurry. You don't get those moments back. Plan for
the future, but don't worry about the future. Worry gets you nowhere. You
should tell the people you care about how you feel as much as possible. Don't
wait for that perfect moment. The perfect moment never comes. My mom passed in
December & I never got to tell her how I felt. Don't let grudges or anger
keep you from living your life. You waste so much time & energy being
angry. If you feel hurt by someone, forgive them. Be kind & compassionate
to everyone you come in contact with during your days. You never know what
someone else is dealing with during their day. Sometimes it's good if you don't
judge, & just listen. Laugh as much as you can each day. You may have it
bad, but I guarantee someone else has it worse. Bad things WILL happen to you.
The key is to not let them defeat you. Try to be strong, but it's ok if you cry
sometimes. Pray. Pray. Pray."
I pray and beg and plead for God to never, EVER have this be part of his "plan" for any of my children!! But I wonder, how do parents remain faithful to this God and trust him after he takes a child from them? How can some people be SO trusting and unselfish? I can only hope and pray that if I were to ever (GOD FORBID) have to endure something so painful as the loss of a child, that I could speak as faithfully and eloquently as these parents do in their blogs. Why would a kind, loving God ever allow something like this? WHY-when parents beg and plead for prayers and prayer chains have spread across the globe! WHY is all I can ask. I want to understand. I want to be one of those with unshaken faith. I want to trust.
Trust. This leads me to my next heavy topic. I have a major issue with trust. Sometimes I don't even trust myself with decisions because I can feel different about things from day to day or hour to hour. It all depends on the day and the time and events leading up to those decisions. So, when I was faced with a situation about a month ago, I surprised myself. My mom logged into her FB on my phone. She left it open. We were busy with our dinner coming and put my phone down to eat. Later in the evening, I was playing around with my phone, on the internet when I noticed one of the open windows on my phone was her FB still open. I don't have a FB anymore, so at first, it was innocent. I was just playing around. But then, I decided to read her messages. I'm not sure why. Maybe it was because I have always known the love was not unconditional or even really true LOVE. I've never felt it from her. Maybe she thinks she has "loved" me, but if she did, she sure had/has a funny way of showing it. I've always known there were resentments and grudges and trust issues. It has been a very rocky relationship to say the least. Especially growing up with her alcoholism being the main theme of my childhood. What I read I wasn't prepared for. Matter of fact, what I read was gut wrenching and made me PHYSICALLY ILL. That night, I did not sleep. Not ONE WINK. After reading those messages, I was up for nearly 48 hours straight. Oddly enough, I didn't even feel tired. Pure adrenaline as I tried to sort it all out in my head.
The messages were full of hatred and jealousy and lies. For two years, she sucked her sisters and her son (my only sibling, MY BROTHER) into these dreadful stories and lies. I read things like, "Make Jenny mad so she doesn't come to Thanksgiving" and, "Get close to Chelsey and Summer to make Jenny jealous". WHY. WHY!? I ask WHY a lot these days. I don't understand being filled with that much hatred. Those two examples are only about .00001 percent of what I read. Between them ALL. So, I was faced with a decision. I could just pretend I never read them. Yep, that was the first plan. But, as the physical illness and emotional aspect of it took it's toll, I confronted them ALL. I sent emails. I'm not sure what the purpose of those emails were, but I had to release some of that hurt. I had to try to understand it! I only personally called my Mother. I asked her to explain the LIES. Flat out LIES!!! She only spit out "For the first time, I'm speechless". Damn right she was speechless. She was speechless because there was nothing she could say and she knew it. There was nothing she could say to the daughter she has never loved unconditionally. You see, her own mother had a special place in her heart for her daughter (ME) and yes, I knew it!! Shame on ME for accepting that unconditional love, right? Ha. So, my whole life, I thought it was two of my aunts that resented me but my own mother's resentment of me was much deeper. I just didn't know it!! I fooled myself. Her next words to me were, "You are dangerous!" DANGEROUS?? If reading my mother's messages on my phone means I'm dangerous, then, I guess I'm GUILTY of being dangerous.
SO, I have thought and prayed and pondered and dreamed and wished and everything else that any human might do to try to understand it all. I've chosen to let it be their problem. I've chosen to be stronger and love my own children even more and be more understanding and tolerant of others. I've chosen to listen and accept more. I've chosen to have a relationship with Summer. It's a work in progress, but some just aren't as easy. I've chosen to be as much UNLIKE my own mother as I possibly can be. These are all choices that we all have. I will not let those messages own me. They have to own it. What I will own is that I shouldn't have read them. That is my part. However, it has helped me understand my upbringing and the feelings I always had about why I did not feel loved and why I felt such resentment towards me. It was REAL!!!
Needless to say, Grandma was and still is a very, VERY special person. She is understanding and loves ME unconditionally and I love her unconditionally as well. To think that those people hoped for me to be unhappy and hoped that Grandma would somehow "See her true colors" is sad. I can only HOPE that someday, they will understand their behavior and maybe even feel remorseful and ask for forgiveness or say "Sorry". Maybe that will happen, maybe not. Only time will tell.
In the meantime, my life is good. It's great, matter of fact. I keep my circles very tight and small. I decide who to let in and when to pull back. I am in control of my happiness and nobody can take that from me. My children are healthy and happy, my marriage is wonderful and I am blessed beyond belief. I just wish things had been different. I wish I could say that I had/have two loving, involved parents in my life who can share the joys of raising my children and who my children can call Grandma and Grandpa, like I had growing up. That bond is so important. My children don't get to experience that. It makes me sad for them. Ben's parents do a good job of being Grandma and Grandpa, but I wish my girls had the same thing with my parents. They just don't. I've spent a lot of time grieving over that.
Most of the time it's as if I am feeling my way through life nearly blind. I envision myself walking through a VERY thick forest. With goggles on. In the fog. In quick sand. I can barely see! There is no path. Nobody before me did any walking in this forest. Nobody before me cleared the way. It's not a well beaten path, but it is mine and I must take it. So, I venture on. Sometimes I get snagged up in vines and thorny bushes and it HURTS. But, then there are times when there are meadows and flowers and beautiful things. Maybe this is just life. But, I feel like my life was not and has not been as easy as some. However, I MUST accept that this is MY LIFE and do it well. I must accept that I have not had it easy but not dwell on it. I must not dwell on something I had and have no control over. It makes life that much more rewarding when walking through those meadows. I appreciate those meadows. I appreciate the little things in life that maybe others don't even notice. That is the beauty of it all. Maybe that's the answer to why God allows sad, terrible things to happen to little innocent children. Maybe they are angels that send us a message of healing and love and being grateful for what we have and cherishing it when we have it. Because, some people don't always see that and others don't always have that. My hope is that this forest will be much easier for my kids to walk through. Sure, they will choose their own paths with most of their life, but, the concrete things like parenting and values I hope to have a path beaten for them so that it's not so rough and so they don't feel like they're going it alone. I hope they can call me anytime, night or day, and know that I care and I love them unconditionally and that I would drop anything for them or their children. I can't wait for the opportunity to be a Grandmother someday. Just not too soon ;-)
Maybe God's message is clear and we just haven't opened our eyes enough to see it. I have seen so much beauty come of these tragedies. The beauty of tragedy is that we see things more clearly. We are stripped of our former selves. All of the yucky stuff that we carried around with us somehow is shed. It's simplistic. We see the beauty in a child's laughter, we care less about a messy house. We are in less of a hurry to get places and might even let someone sneak in front of us. We see that when others are ugly to us, maybe they need help, or maybe they are having personal struggles themselves. I am trying really hard to see the beauty amongst all of the pain and ugliness that surrounds us in this fallen world. It's there, it's there. You just have to open your eyes a little more.
Taken on Sunday between thunderstorms: